Ale House Benefit

Well my plan to do nothing but sleep all day and relax yesterday work ! Sister and I went up to the Ale House at about 3:30 and spent a half hour in the parking lot talking to people who were leaving . I was not sure what to expect . My dad and sister kept saying there was going to be like four to three hundred people through out the day . I thought they were nutts ( yup they so crazy they get two " T's ") ! I was thinking to my self my dad might be a C.P.A. but he can not count people ! Boy did I eat my words ! From what I heard the place had been packed since about noon till seven when we left . CRAZY !!!!

I can not explain the emotions that I was feeling they changed a lot . When I first walked in and saw everybody , I felt the tight feeling my neck and my eyes felt like they might start to open the flood gates . ( I haven't had a flood gate moment yet . Last time I cried my brain leaked so I think I am still a little scared to cry . ) It is an odd feeling for me to have something that large for me . It was weird to see my face up on posters . ( kinda felt like a bought a pint of milk and saw myself as a lost child . hahah any ways )

It was really cool to see people whom I have been friends with since I was in kindergarten ! I am so floored that I have friends that I have known for that long . They know where I keep the bodies so to speak . They are the ones that know the stories that you wished were not true . They know what you wanted to be when you were 5 and still think you could be a bar spinner or a professional wrestler on G.L.O.W. ! Ahhh I'm so lucky !

I loved the drawings that Mandy and Twan's daughters made for me ! They were soo cute when giving them to me . Little kid hugs are some of the best . Then Mr. McKay framed and blew up this photo that I had asked him to take for me when we were in Copalis for Anns 30Th birthday . It was the light shining down through the clouds and trees so it looks like fingers . I loved it ! My mom use to tell us when that happened it was our loved ones who went to heaven reaching down to hug us . So I was pretty excited to see that Pip lived up to the standered in which I think of his work and got the most spetacular shot ! It was truelly lovely .

Tonight was a rare night . I'm glad that I was well enough to experience it . I can not remember the last time I had so many hugs ! Love hugs ! I also met a lot of new people . I just hope I can remember all the names and faces .....

Well sister just brought me an evening cocktail of Airborn and my mind is starting to drift , I want to write more but I think it will have to wait till tomorrow , So with this I say goodnight my friends . Thank you and spred the love .

Lazy Bones

Well today I did not done much at all . I wanted to rest up for the benefit the Ale House is having for me tomorrow . There for I have been in the house all day . Reading , Sleeping , Facebooking ( really playing bejeweled =) ) , Sleeping , Writing thank yous , Sleeping , and took a nap with Karyn's cat Rainie she is like taking a sleeping pill ! She crawls up next to and is all warm an starts to purr . Her and I race to see who can fall asleep 1st also we are at about a tie . I have to say I wish besides certian gimies there was more for me to do . They really don't target people who can't do much in the game department . I think there is solitair .... Granted the computer is nice and a good way to feel connected to friends but I can only stare at the screen for so long . Well maybe that is what I will do while I wait to be cleared for reagular activity , mmmmm wonder what kind of game I will come up with ? psss any ideas ?

I am super stoked to see everyone and catch up on what you all have been doing ! I just hope that I have enough energy to keep up with everyone . I am amazed at the amount of support that I have recieved . I mean it is just inspiring , It is hard to feel bad when you get so many people telling you that everything is going to be ok . It just goes to prove to me the power of words .

A good day

Well today I had a day off from being scanned , poked , taped , or told really big words that I will never be able to spell . It was nice ! Super nice ! Karyn arranged for mom and I to get our hair done at Embellish Salon . My stylist Trish was AWESOME ! When she was shampooing my hair I told her it was my favorite thing about a hair cut . I really like the head massage plus the smell of the shampoo and the warm water , it is so relaxing . She told me I was in luck because she was going to shampoo my hair 3 time to get all the sticky stuff ( the monitor sticker where super sticky ! ) , iodine , and what ever else was still holding on that I wasn't able to get myself . That alone made my day almost . Trish was so careful around my staple area and where the brain drain were , almost more than me .
Trish did a cute cut that would help me hide my staple area . I don't mind it that much but it seem to disturb little children and other girls - had a few ask if I need a safe place to stay , never had that happen before but thought that was super sweet , but then woundered if they would just drop me off at the shelter ...- Trish also showed me how to style my hair . I really thought that was fabulouse because I am not known for my hair styling abilities , if I am it is for the lack of . She made it super easy and even made it seem simple . Oh yeah I have bangs for the first time in .... almost 13 years maybe longer . I am not use to them yet not sure if I will get the chance but who knows I could ! Opps almost forgot moms hair looks super cute too !
After that we went to Hellp Cupcake so I could get a friend a cupcake for her birthday . Since we were there we thought we might as well have one too . They were darn tasty ! Sister and I splite a chocolate caupcake with buttercream and a white cupcake with chocolate buttercream . What can I say we had cupcake jungle fever ! Mom had a chocolate cupcake with peppermint chocolate buttercream . If you ever get the chance go ! It was my 2nd time there and I am always blown away by how good they are .
Sister and I then went and drove around getting a few things done . After that had a good dinner ! Erin came and picked me up and we went out to celebrate her birthday ! Yippy ! I was talking with a guy when I was there and I had told him about my tumor . He prceded to tell me about his friend who even though he would complain about not feeling well and all the other weird stuff he had happening to him did not go to the doctor . Yet he went out every night with the boys and drank . What ended up happening was he drank through his cancer . I am pretty sure if I would not have noticed as soon as I did if I hadn't quit drinking . I would of chalked up the headaches to hangovers or lack of water maybe even to much coffee . I am also lucky that my family and close friends listen to me . I was urged both times I went to urgent care by them . They were there to hold my hand , give me the nod that it would be alright , then the hug and hand squeezes saying everything will work out . I am honored to have such people in my life . Thank you all for everything you do for me and my family . The prayers , love , words of encouragement they all help and make a differance . Thank you !

Thursday, January 28, 2010

Tick, Tock... Tick, Tock... time. It can rush by or seem to stand still. Thirty seconds can seem like nothing. You can hold your breath for 30 seconds (or you should be able to), but you couldn't sit on a hot stove for more than a second or two before that amount of time was too long. So when we think about time, it all depends on what we are thinking about. On Wednesday Elizabeth had to lie flat (since her surgery she's had to be at a 35° angle or more... even sleeping). The CAT scan and MRI were both lying flat and for 20 minutes and about 45 minutes... respectively, but enough that with all the fluids she had to ingest her face became swollen and her left eye was almost shut and under her eye the tissue looked reddish, like she was slapped. It was the symptoms she had missed after the surgery. She was told she might experience swelling and black eyes after the trauma of the surgery, but she didn't... until the scanning procedures. So she had discomfort and a headache. Which was probably from her swollen face pressing her eyes and against her head.

Mom and Dad joined Karyn and Elizabeth today at the radiologist's office. Dr. Reiki. He was measured and direct in his explanation of just what had happened and what he proposed. The most unusual thing was this tumor was not common. It was in fact, uncommon if not rare... all tumors are cells that "go amuck". So breast cancer is breast cells that mutate and the body fights them. The prostate are prostate cells. Elizabeth, never one to do it easy, had primitive cells become cancerous. That means the cells BEFORE they become specific cells. So these cells in her brain were primitive because they had not become specific. And we were told we all have primitive cells, but very few... as cells become what they need to be and don't stay primitive. So for her to have primitive cells become cancerous was a long shot to begin with.

Now because of this, they want to follow the scans, which show no cancer, with a lumbar puncture. They would draw spinal fluid from her lower back and check it for primitive cells. To see if she is free of them or not. Then that will help determine the course of treatment. After we have the results of this procedure (Monday) we will be going to the UW to confer with the head of the neurology department.

So you can see she isn't just laying around eating the yummy food that is being brought by well-wishers, but she is hard at work healing and being a good patient. Her sister is an excellent caregiver, helping her in all things to do with her recovery. Karyn is the unsung hero in this event. She has given generously of her time and money to help her sister. She drives her to appointments (parents drive if Karyn can't), prepares meals, cleans, and sterilizes her home for Elizabeth. One gets exhausted just thinking about all the work.

So keep Elizabeth in your prayers. We want her spinal fluid clear of any cells that should NOT be there. Keep those good vibes coming. Prayers are greatly appreciated. Thank you to all who pray for her, who send food, and who are helping in so many ways. We send blessings to each of you for your concern and help. Friends and family are a true Godsend.

Wednesday, January 27, 2010

Today was the day Elizabeth prepared for her "mapping". She drank her barium and then when she actually got there they put her on an IV for more colorant in her circulatory system. First came the CAT scan then the MRI. On Thursday morning she will meet with her radiologist. Then the daily radiology sessions will begin...

Today was tiring. All the tries that it took to find her veins made her tired, as it would anyone; the anxiety of this all building up to the treatment; the hours in the labs; the waiting to hear and the not knowing just what to expect. I think it took its toll today.

She was so grateful for the bean soup and bread she had today. Both girls say that having the healthy good food makes it easier at a busy time of day. Today Karyn worked in the afternoon and Mom ferried Elizabeth hither and yon. So they got home around five tonight to a meal that was ready. The mint brownies were great too, so thank you, thank you.

Hope you'll join us all at the Ale House for a fundraiser to help Elizabeth.

1pm - 6pm Jan 31st.

Staples !!! Urge ...

Well today sister , mom,and I all went to Dr. Harris office to have a follow up and to have my staples removed . Yikes ! Over the last week I have heard horror stories and ones that said they didn't feel a thing . Then add my imagination and a few fears and I was almost a nervous wreck ! PLus the night before I had a dream that I had pulled out 3 myself ! I woke in a cold sweat and had to go look in the mirror just to make sure .
So we all pile in the little exam room and the nurse comes in and looks at my train tracks and says " oh we are removing staples " and I tell her that I'm a chicken and she tries to relax me by telling me she fast and good at it . She had such an air of confidence I had to trust her . So she starts pulling them out and she was right ! She was good at it and even with my mom hanging over her shoulder with her cell phone trying to take pictures .
She was done in about a minute which I thought was super fast considering I had about 38 to 40 staples in my dome . I only had one that really hurt but that was because I had some hair under the staple .
Then Dr.Harris came in . ( side bar - So I was pretty doped up on pain killers and other stuff when I was in the hospital , plus I could not wear my glasses due to the large amounts of gauze on my head . The way I could tell everyone apart was by the way their voice sounded . ) I kinda of looked at him kinda odd and said " I didn't recognize you with out drugs ...." He gave me a smirk and said he gets that a lot .
The coolest part was when he showed me my tumor !!! I had heard what size it was and I understood how big it was , but seeing it actually in the brain and how much room it really took up . Well it was almost breath taking slight horror mixed with relief . It was also kind of a immortal moment . I mean I know I'm not but I guess I still was hanging on to a little of the thought still , not so much any more . That thing looked huge in my brain !! I could not believe it !
So we go to make it a follow up appointment and the receptionist asked if i wanted a 9am or 11:45 . I tell her the 11:45 . My then my mom asked her " When does Dr. Harris go for lunch ?" The lady says" at noon " . I look at my mom with kinda wide eyes and say " Why did you want to take him out ? " ( then sister and I snicker hehe ) The receptionist then replies " Well you know he's married . " My sister chimes in " so is she ! " . Mom chips in " almost forty years !! " We all go out the door laughing lightly at the situation . While we are waiting for the elevator sister looks at mom and asks " Do you really want to take him to lunch ?" Mom looks at sister and replies " Well I think it would be a good way to thank him for his services " I look at sister we both have the same kind of look and start laughing and both say " services ! " Mom punches us both in the arm and declares " YOU TWO I SWEAR ! "
Gotta love family outings ...

Sunday, January 24, 2010

Today is party day! Yeah. Tomorrow is her "real" birthday, but today we celebrate. Several of her friends are coming, Laurel & Sergio with daughters Mattie and Maycee, Carolyn, Erin, Vanessa (her aunt) and Vanessa's fiance, Colin, her bf, Paul and the family. Not too many just a core of people who have been helping her for the last three weeks and with whom she's been close. We know that many would want to come, but our dining room can only seat 16 so the 14 that were here about maxed us out. Elizabeth was maxed. She was dog tired at the end of the evening, but so happy to have seen her friends. It is always fun to have younger people about the house. They told stories on themselves and laughter was everywhere.

Elizabeth's father makes the BEST spaghetti sauce. His sauce makes others pale by comparison. Yum. A great salad was made by Karyn. She puts corn kernels in it. That always throws me, but it is so good. The craisons, and homemade candied walnuts don't hurt it either. It is such a good salad. There were three types of french bread: plain buttered, buttered with garlic, and cheesy bread. Then dessert. Good wine, lots of water, and friends sharing a meal.

I cannot say what Elizabeth thought tonight, I didn't ask her, but I know that every guest expressed their heartfelt affection for her and the fact that she is here with us. It was a true celebration of life... hers.

She opened presents and asked for spaghetti sauce to take back to Karyn's. She got a big piece of the dessert for later and off she went... tired, but happy.

Oh, and she told a story on herself and her father. It seems after lunch yesterday they went to Costco, to purchase supplies for today and to look around. Well, the walked by the recliners and both of them have medical issues and tire easily... you guessed it! They each laid back in a chair and feel asleep! In Costco! Ah, Elizabeth— just knowing you makes me a happier person.

Saturday, January 23 , 2010

Saturday dawned sunny. In the Northwest any day that's sunny is a good day. So after her morning appointment Liz joined her dad for lunch. Just Dad and Elizabeth chillin' and laughing. Mom was at a P.E.O. luncheon and Karyn was at home catching up on chores that have been neglected.

A nap (naturally) on Mom and Dad's bed and she was ready for her bf, Paul, to come over with Karyn to help Mom put away the Christmas boxes: tree decorations, garlands, lights, table cloths, and much more. Liz just chilled while the three of them toted this and that box or bag. Finally done the three disappeared into the night to enjoy dinner at Opa! on Sixth Ave.

Everyone had a good day. Tomorrow is her birthday party. Now I need to give you the vanilla torte recipe...

Now this is yummy, so read with caution: May cause craving in some adults. Jones-ing for a fix is a common side effect. So proceed with care.

Vanilla Torte

Crust
1C flour                          
1 cube butter (margarine)    
1/2 C finely chopped nuts              

Mix these three ingredients with a pastry knife. Pat into a 9 x 13 pan Bake for 15min. at 375°. Cool thoroughly before adding remaining ingredients.

Mix together: (Electric mixer)
8 oz cream cheese (to help cut calories I use Neufachel Lite Cream Cheese)
1 C powdered sugar
1 C cool whip ( I get the large Cool Whip and often use the Lite version)

Spread on crust.

Next Layer:
2 small pkgs of vanilla instant pudding (not cooked typed), use 3 C. milk rather than recipe amount and follow remaining directions

Top with remaining cool whip.

Enjoy.

KCJW

Friday, January 22, 2010

Time is ticking away. Elizabeth is becoming more and more like herself. Still tired, but witty as ever. Always looking at the positive side of life. Enjoying each day. Today she had a morning appointment; then her sister, Karyn, took her to return dishes that had been brought full of comfort food. Yum, yum. The gratitude from Elizabeth and Karyn for meals is second only to the tastiness of the vittles. The food that friends have been bringing to spare Karyn the efforts of cooking are very appreciated.

Karyn, whose job was lost in November, is grateful not just for the efforts saved in making food, but in the expense of making the food. Karyn has been doing a bit of contract work and that is giving her some money, but no time; so again the food is so welcome. Thank you each and everyone for your efforts to help relieve the drudgery that sets in when emotionally ragged.

I was looking at Elizabeth today. She is just a few days from her 31st birthday. She is so young to be faced with her mortality. Those who are older will understand what I'm saying; those who are younger will later. An event like this can leave us looking outwardly the same, but inwardly volunerable. While Elizabeth is mending well, she must be supported emotionally for the next month as she goes day after day to radiation.

It is always the unknown that weighs on our minds. And I'm sure this weighs on her's, though she has said nothing. She always has a bright smile and a ready laugh; the odd way of seeing something that brings humor to all; the turn of a phrase and play on words that exercises her mind. She will want to talk to you, her friend; to spend time with you, her friend. In the end isn't that what we all want? To share time with those we feel close to; or share a kindred spirit with?

Today she had a nap (of course) after the car ride and Karyn helped Mom take down the Christmas stuff in preparation for Sunday's birthday par-te. Ya, Man. It will be her dad's spaghetti and her mom's vanilla torte (instead of cake) on the Birthday Girl's Menu Request. Yum. Sorry there isn't enough for everyone, but I will share the recipe if you want it... it is one that we have used for 35 years. It still gets rave reviews– if you know the Doman's you can ask them how good it is, they have used it almost as long. You taste it, you love it. Recipe tomorrow.

Wednesday and Thursday, January 20 & 21

Well, if you've been staying with the blog all along you know Liz has come a long way. She has stood at the precipice and then come back. They found a tumor and removed it. She is very healthy, though still tiring easily. Yesterday and today were fairly quite. She went out to lunch yesterday with a friend and after the outing came home for a nap. Today she had an early morning meeting and then some time to herself as Karyn is working a little for her former company and Mom didn't get over there until early afternoon.

When Mom got there Liz and Mom walked to Farelli's for a cup of tomato bisque and cheesy bread and a walk back home. Liz had boiled eggs to make egg salad and did a yummy job. We had egg salad sandwiches for dinner. A game of Mexican Train (dominoes) after dinner and the visit of one friend and Liz was ready to call it a night.

For those who know her know this would have been nothing to Liz last year. We are gearing up for the radiation treatment next week. Wednesday they will map her body for the radiation. All of that lead us to talk about the hard copies of the MRI. She wants to get one to frame. We think that would be very cool.

We are talking about shirt designs too. We spit ball ideas like: Avocado Grove; Get Your Grove On... Join Liz's Avocado Grove... or be green. Have ideas? Let's hear 'em.

Her improvement is nothing short of wonderful for all of us. Soon round Two. We are talking a lot about how to help her pay for her bills, especially without insurance and without working for three weeks, so far. Don't forget we're having a spaghetti feed for her on January 31 at the Ale House. Noon to 8PM. (I think)... more on that later. Thanks for keep up on Liz. She is so grateful for your concern.

Tuesday, January 19, 2010

Tuesday dawned early for Liz... she was up at the early morning time of 6AM! Karyn is her driver and off they went to an 8AM appointment. Home for lunch. A nap. A light snack. Dinner with family and then a calendar update. Elizabeth can only schedule one thing a day. Our trip yesterday was actually too tiring with the long lunch. It takes too much out of her to do things for more than a couple of hours. So if you've wondered why she's moving so slow when she seems to be are "ole Liz"... it's because her brain has to heal from the trauma of surgery and the tumor. She has not experienced any bad effects from the surgery, because she is very careful not to do too much nor to do things she shouldn't.

She cannot lift more than 5 pounds. A half gallon of milk = 8 cups... a pint = 2 cups (stay with me now... I'm building to how much a half gallon of milk weighs)... and a pint weighs a pound... so a half gallon is about 4 pounds! So she is just about maxed out at a half gallon. Five pints of beer would be her limit to carry, but the tray to carry them on would put her over the weight limit. Yeah, right... can't serve a big table of thirsty customers with a limit of 4 beers on a tray.

She cannot put her head lower than her heart. So no bending to pick up anything that's dropped. That makes her sister, parents and friends her "step and fetch" Gofers. Can't lay flat... head at about 35° to bed.

She cannot do repetitive motions. (Wouldn't that be counting pull tabs for customers, or pulling the taps on kegs?)

She cannot twist or turn nor can she sneeze or cough.

All said and done these rules aren't too bad. But they are driving our girl crazy. She says she wants to be able to have more freedom to do things for herself. Her sister, Nurse Rached, is on her case if she does ANY thing the least bit suspect. So tonight for our nite time toddy we are all drinking a double old fashion filled with Airborne. Gotta do what we can to stay healthy and keep any "bugs" at bay.

Another day checked off for our patient. Another Good Day. She feels very good. Has her sense of humor and minds her nurse. She appreciates your concern and prayers. All the well-wishers are a blessing to her. Thank you.

Monday, Jan. 18— First Outing Since January 5th!!!

Monday Elizabeth was allowed to ride in a car! So we packed up Karyn's car and off we went to shop (girl bonding stuff) down in Centralia. Monday the sun was shining and there was no rain. It was a great trip filled with stories of trips made at other times... reminiscences of fun times on the I-5 corridor. Yeah. Then we had a loooonnnngggg lunch at McMinamen's Olympic Restaurant. There was only one server and he was working hard, but there's only so much one person can do. Elizabeth regaled us with stories of busy days at the Ale House. (So, you Ale House folks, know you aren't far from her mind and heart.)

Oh, and come to the spaghetti feed at the Ale House on January 31st to see Liz model her new sweater. (Ya know it's the small things in life that give us pleasure... like a new sweater.)

Bring friends and plan to come.

Saturday, January 16, 2010

A milestone is reached!!!!! Elizabeth was allowed to have her hair washed. You could hear her sigh for blocks. Imagine not being able to wash your hair for two weeks! She said it doesn't look its best but she feels much better than before.

Movie watching, enjoying meals provided by friends and family and short visits by by friends/family who call for an appointment are how Elizabeth spends her day.

She wanted all who have provided food to know that she is very grateful, as is her sister, Karyn. If you have never been a caregiver, you may not realize how draining it is to be on call 24/7. The help of prepared meals is so welcomed! We can all relate to the strain of even just deciding WHAT to serve. Having the whole meal come ready to eat is a true blessing. And yummy.

Friday, January 15, 2010

Elizabeth and her family continue to thank all who have made inquiries about Elizabeth's health.

Liz is very much herself, with a snappy wit and ready laugh. She had had some issues with her vision, mostly from not being able to wear her glasses in a proper way. (Without a turban) We expect that when the turban is off her new glasses will give her vision the correction they need.

Friday was a long day for Liz with friends and family dropping by to say hello. Her stamina is increasing and she is better at being able to handle a long day, but we are cautioned by Nurse Ratched to take it easy. Karyn is NR and takes her job seriously. So we tend to "mind" her.

Elizabeth had family see her Friday who had experienced first hand radiation treatment. They came to talk to her about what to expect and their experiences. This was helpful to Liz. It is worth mentioning that recovery from the surgery is one thing, but there is still the daily doses of radiation that will be required to finish the treatment.

Elizabeth is not allowed to do much. This is driving her crazy. We tell her to sit back and we will get her water, meals, etc. She just can't relax with that concept. It is hard when you are used to doing things for yourself to give over this power to others. She is looking forward to Monday, when she is allowed to ride in a car. while that isn't exactly "doing" something, I'm sure it will feel very freeing.

Liz did mention that all the Food Channel that she's watched lately has her dreaming about food... good food, not junk food. So she has expressed the desire to cook more, using good ingredients. She will be acting on this with her sister when they put into an auction to benefit Elizabeth a meal for four. More on the auction as it is organized.

Thursday, January 14, 2010

After the second surgery Elizabeth's room was on the south side of the "J Wing" and faced Mt. Rainier. She loved having that view. She said she loved looking out the window at the sky, and being able to see the mountain early in the morning.

On Thursday her father joined her again at breakfast time for their daily time together. She says he can fall asleep while visiting her, a phenomenon not limited to visiting her (ask Doug Rohner, Frank Hayes or Frank Foster — he's slept while visiting anyone one of them in the hospital) but they enjoy watching the early news, playing cribbage and just talking. Elizabeth is a real Daddy's girl. So he makes sure to give her plenty of his time.

The turban was rewrapped on Thursday and looked pretty good. The soaked old one was gone and now we just needed to keep a watch on the clean one. We were all glad when she was declared "good to go".

She went to Karyn's house where Karyn has had to do some special cleaning and preparing. No pet dander, no stairs, all surfaces to be disinfected, etc. It is the reason she did NOT go to her parents' home. Jim and Kathryn have two dogs and two flights of stairs. Karyn has a cat and no stairs that would be in play if Elizabeth stayed there. It was only after the first surgery that we learned there can be no pet dander in the home... duhhh. Well, that definitely put Jim and Kathryn's home off the list. Two long haired dogs definitely have dander. Then the shower must be spotless and no one can use it without scrubbing it down again to make it spotless. A lot of work, so that would be hard for three to share the shower at her parents. So Karyn has decided to dedicate the shower to Elizabeth and will take care of grooming at a friends or her parents. That way the labor to keep the bathroom spotless is much easier.

Thursday night a yummy meal of Spanish rice and pork chops was shared by Karyn, Elizabeth and Kathryn (Mom) and the Thirteenth book about Stephanie Plum was continued. Howling was heard from the bedroom, where the book was being read, for minutes at a time. The Lula character is one that is really enjoyed by all, and Kathryn works hard to read Lula's parts with a lot of energy, because she knows Elizabeth enjoys it so much.

Elizabeth continues to make good progress in mending from the surgery. She will, however, need daily treatments for about a month with radiation. Yes, her tumor was malignant and it was a phase three. So treatment is important to be sure this "bad boy" doesn't come back.

So please keep praying for Elizabeth and know that she is ever so grateful to each of you for your well-wishes, comments, and love.

Wednesday, January 13, 2010

Elizabeth slept fine on Tuesday night. She was told if her sutures continued to leak spinal fluid she'd have yet another procedure done, so she couldn't eat— incase there was a surgery.

By mid afternoon she was in rare form. Crabby about not eating. You didn't want to talk about food or bring something in. She'd jump on you. So everyone was pretty good about not doing that.

Wednesday (late afternoon) was the day for the neurosurgery review board. Elizabeth's was first up. Her father was able to actually hear the physicians discuss her surgery. He said he heard all the words, but it didn't really compute. Too much medical jargon for him to make a lot of it; but he did find out that it was a rare form of tumor without a history as to why it would form. It has nothing to do with foods eaten or not eaten; with environmental issues nor with health. He was told sometimes cells just go a muck. And Elizabeth's had done that.

We were beginning to think it might have been the Chantix that she used to stop smoking. We had read a lot about it and it seemed to fit. However, we have moved on from that supposition. Jim (Elizabeth's dad) also learned it was 20% of her brain size! We knew it was big, but wow. We had likened the size to an avocado.

Elizabeth's sister, Karyn, is her primary caregiver during this ordeal. Mom and Dad help out, but the bottom line is that she's staying at Karyn's home. So Elizabeth calls Karyn, Nurse Ratched. And they both call this event, "One Flew over the Avocado". Then they will both laugh. Dr. Harris after the second surgery came in wondering which of us was Elizabeth's Nurse Ratched. He had a smile when asking. Karyn owned up and they enjoyed the joke.

So Elizabeth's infectious humor was evident to her physicians. And when her dad dropped in on Wednesday afternoon before the neurosurgery review board meeting, Elizabeth told him to tell her doctor that she was HUNGRY! Her doctor decided she could have dinner and her mom got there in time to see her "eat the whole thing". Yep, she would have gotten a star if they were being handed out.

She went to sleep Wednesday on a full tummy and knew if there was an leakage the next day would be a hungry one.

Home :-)

Liz was released from the hospital today. She is at Karyn's house where she is being waited on hand and foot by the KW2 (mom and sister) and continueing to rest and recoup from surgery.

Tuesday wait an see

On Tuesday Elizabeth had no pain. She did have a large turban on her head to help with the drainage of the spinal fluid. The turban of gauze also applied slight pressure back toward her head. She says it feels good. We think the skull's pressure pushing out and the gauze pressing back equalizes so she feel pretty good.

Because the gauze is so thick she can't wear her glasses so we usually don't watch TV, but Mom reads to her from Stephanie Plum. Tuesday they began the Thirteenth book. Mom tries different voices and inflections for Lula, Granma Mazur and other characters. There are times the laughter doesn't stop for two or three minutes. (Lula is a kick.)

Tuesday night was the first time no family or bf stayed the night. Elizabeth said she felt fine being there alone, and actually wanted some time alone. So we respected that and she spent her first night alone. (Of course hospital staff was there.)

Monday's Procedure

On Monday Elizabeth's doctor went in and patched the hole in her dura. Which is the outer casing around her brain. It is the casing that keeps the spinal fluid safely contained around the brain.

That procedure went fine. BUT her brain continued to loose spinal fluid... at a rate that Dr. Harris was not okay with. So instead of her going home on Tuesday he kept her to monitor the fluid.

To learn more about the dura: http://en.wikipedia.org/wiki/Dura_mater

Tuesday January 12, 2010

Liz is still in the hospital. They are continuing to monitor her from her surgery yesterday to fix the leakage. Please continue to send healing thoughts and prayers to Liz.

Monday PM

Liz's surgery this afternoon went well. She is recovering in the hospital and will be coming to Karyn's house either Tuesday or Wednesday.

Thank you everyone for keeping her in your thoughts and prayrs.

Monday AM

Liz was taken into surgury just a little bit ago to repair the drainage.
Please continue to send your good thoughts and prayers for Liz and a speedy recovery.

We will post an update to the surgery this afternoon.

Thank you for all of your support and continued good thoughts and prayers for Liz.

Sunday Travails

At the 4 AM scheduled meds Karyn and Elizabeth noticed some drainage from the wound of the operation. So they called us (Mom and Dad) and we met them at about 6:30 AM at the TG ER. After much waiting, a few well taken sutures and gauze wrap we were out of there.

Elizabeth went back to Karyn's for rest. Then after dinner (5:30pm) her head had more discharge. Which Karyn changed her dressing and waited, but again it became very damp so Karyn took Elizabeth back to the ER. They went about 6:30 PM today. And we just received the call that Elizabeth is being readmitted.

Please keep praying for her. She needs all of us helping her get well. It is proven that prayer can/does help. Right now Elizabeth is facing an ugly situation. She needs all of our positive thoughts/energy and prayers.

Just an aside that Elizabeth would laugh with you about: The day the tumor was diagnosed we went from her house to the Urgent Care at Westgate. (Intending to eat breakfast after the doctor visit.) But the doctor had us go directly to Allenmore. When we got there we were both hungry, but they told Elizabeth she couldn't eat after checking in. So she kept saying how hungry she was... Then they shipped us to TG via ambulance, and still no food. They put her on liquids until her surgery was over the next night. Well, she was very hungry. Then today happened... again no breakfast. So when tonight happened she had just finished a good meal... at least she is there with a meal and not on an empty tummy again. Hurrah for her.

I am still fighting my terrible cold. I want nothing more than to be by her side, but I'd hate to infect her with my virulent cold bugs. So I'm here writing to you all and hope to get well enough to visit her tomorrow. I MUST get to see her. This not going because I'm sick is enough to make me violent... good things I'm home with lots of pillows to punch.

More as we know it.

Saturday Morning

Liz is settling well. She has been sleeping a lot and is doing well. I don't have much else to report, just wanted to give everyone an update. Karyn

heading home!

Liz will be coming home today. She would like to thank everyone again for continuing to keep her in your thoughts and prayers. She still has some recovery to go through and is asking everyone to please be patient with her during her recovery.

Donations

We have added a link to the top of the blog that will allow for donations to help assist with medical bills for Elizabeth. Thank you all for your support, love and encouragement.

Thursday Night

Earlier today Liz moved from the ICU to a standard room. She is continuing to do well and keeps us all laughing. Liz wanted me to pass along to everyone a huge thank you for all of your support and love.

Thursday Morning: January 7, 2010

The MRI which was done last night was reviewed by Dr. Harris today and we were told that the area looks very good. There are no signs of the tumor. We are still waiting, perhaps another day, for the results from the lab.

While many want to come see her, Elizabeth has a low tolerance for sound, light and confusion. So she has asked that even those who she loves as dear family or friends respect this and wait until she says she can handle a visit. It is just too tiring and too stressful. Right now it is only immediate family that is taking care of her.

She is scheduled to be moved from ICU today to a main ward, where her family's vigilance will be even more helpful, as it is on the general wards where the nursing staff is spread thinner. So the family's involvement is more important. When released she will be going home to her parent's house. There to be cared for while recovering.

More info as we know it.

Wednesday's update

Today is day one of recovery. Liz has been progressing well. They are continuing to monitor her in the ICU, where she is keeping us, and the staff, entertained in true Liz Fasion with her whitty personallity. They are anticipating her to be in the ICU for a little bit longer and then move to a 'standard' room.

The big events for today, so far, have been that Liz was able to move from the bed into a chair and sit up for about 30 minutes and that they removed one of the tubes from her arm.

Thank you to everyone that has been asking about how to submit donations. We will be posting information for donations to the blog tomorrow. Sorry for the delay.

After Surgery

The surgery this afternoon went well.  They were able to remove the tumor.  Samples of the tumor were taken for pathology to determine more about the type of tumor, but these results will take a week or two.

Mean while Liz is recovering well.  Please continue to send your condolences via the website or Facebook she will love to read them.  Liz is not accepting visitor at this time.  We will continue to keep you posted on her status and recovery.

The History

Thanks for stopping by to check in on Liz's Brain Waves.  Liz appreciates all of support from everyone.  On Monday January 4th, Liz went to the Urgent Care Clinic due to extremely painful headaches that she has been experiencing.  The Clinic sent her to the ER at Allenmore, who in turn sent her to the ICU at Tacoma General.  She went in for surgery the afternoon of Tuesday January 5th to remove the tumor.

Liz has been experiencing headaches for a few months now, but it was not known that they were due to a tumor.  (Slow growing for about two years). Over the last weekend her headaches reached a new level and she went back to the Urgent Care Center where the physican recognizing the signs of pressure in her retina had her go to Allenmore. There they did a CAT scan, which showed a mass; so they did an MRI. Dr. Harris, a neurosurgeon at Tacoma General, said her tumor presented as an anomaly and he wanted to perform surgery as soon as possible. He said upon completion of the procedure that she was doing well, and it would be a "wait and see" situation until the lab results came back. We are hopeful for a full recovery, however she will need rehab and be off work for one or two months.

In leu of flowers or presents we are asking for donations to help assist with the medical and other bills (Liz does not have medial insurance and will be out of work for about a month or two) .  We will be following up with information shortly regarding donations. 

As information develops we will continue to post updates on this page.  Please feel free share the page with others and to leave comments at this time Liz is not accepting visitors at the Hospital, but would love to receive comments from you.